This is how my 2.5 year old son with cancer, his older brother and I survived leukemia treatment and managed to reenter the real world over four long years. Just barely.

Childhood cancer occurs regularly, randomly and spares no ethnic group, socioeconomic class or geographical region. One in every 330 Americans develops cancer, during childhood or adolescence, before the age of 20. The cause of most childhood cancers is unknown and at present, childhood cancer can not be prevented.

Follow the road.

One of the first things you get in treatment is the ever present RoadMap. With our hospital, since it was a teaching hospital, they essentially did a coinflip to see what path Skeeter’s treatment would take because they have three different medical trials running at one time. We didn’t have a choice in the path

Continue reading ….Follow the road.

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Intro to Leukemia

As we are all mostly familiar with, cancer is abnormal cell growth. There are hundreds of kinds of cancer and generally, kids get different kinds than adults. Unfortunately, cancers that happen to kids tend to occur in developing cells like the bone marrow, blood, kidneys and tissues forming the nervous system, whereas adult cancers happen

Continue reading ….Intro to Leukemia

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The First Remission

Here is an old journal entry about Skeeter hitting remission.

Tuesday, April 27, 2004

White Cell Count: *** (Normal = 4.0 – 12)
Hemoglobin: 10.0 (Normal = 11.5 -14.5)
Platelet: 159 (Normal = 160 – 370)
ANC: 3860 (Normal = 1400 – 6600)

YEAH! It is official… Skeeter is in remission. His last draw came up at less than

Continue reading ….The First Remission

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The first night in the hospital

Wednesday, April 07, 2004

First hospitalization

White Cell Count: 5.4 (Normal = 4.0 – 12)
Hemoglobin: 5.6 (Normal = 11.5 -14.5)
Platelet: 56 (Normal = 160 – 370)
ANC: 216 (Normal = 1400 – 6600)

Skeeter spent the night getting three blood transfusions and platelets because he needed to have two procedures done today. First of all they had to

Continue reading ….The first night in the hospital

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A lucky chance diagnosis.

This is the first journal entry we had on our CaringBridge site.

White Cell Count: 14.0 (Normal = 4.0 – 12)
Hemoglobin: 4.8 (Normal = 11.5 -14.5)
Platelet: 25 (Normal = 160 – 370)
ANC: 420 (Normal = 1400 – 6600)

Skeeter just before dx in 2004

It was a Tuesday. I will never forget that it was a Tuesday.

Continue reading ….A lucky chance diagnosis.

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